Victoria Arlen was trapped inside her body for 4 years – this is her story

Girl trapped in her own body for 4 years, wakes up and exposes the truth she’d been forced to keep quiet

Victoria Arlen was born a healthy triplet, and as a little girl loved to dance showcase her talent in sports.

However, aged just 11, Victoria began to experience worrying flu-like symptoms. She fainted several times and contracted pneumonia.

Two short weeks later, she was paralysed from the waist down. Her body shut off, piece by piece. A severe inflammation of the brain and spinal cord had destroyed her whole life.

Her family could only watch in horror as Victoria lost the ability to talk, eat or move freely.

But her incredible story was only just beginning. What happened four years later would shock her family and physicians alike.

Victoria spent almost four years ‘trapped’ inside her own body.

Doctors explained to her family that she was in a vegetative state. Only through being fed via a tube was she given the sustenance to stay alive.

Her parents were made aware early on that it was highly unlikely she would recover.

“We lost her,” her mother, Jacqueline said.

What nobody knew, though, was that Victoria could hear her loved ones beside her hospital bed.

Two years after slipping into the coma, she ‘woke up’ again mentally, but still could not move her body. She could hear conversations around her and wanted to react, but her body would not obey her commands.

In a situation not unlike something from a nightmare, Victoria had no way of telling people what was happening to her.

Doctors’ prognosis

By this time, doctors had discovered the unusual disease that had caused the inflammation in Victoria’s spinal cord and brain.

She heard doctors tell her family that she was effectively brain-dead. She would remain in a vegetative state for the rest of her life.

“But my parents believed in me. They set up a hospital room in our house in New Hampshire, and took care of me. My three brothers — I’m a triplet and we have an older brother — talked to me and kept me in the know about what was going on outside of my room. They empowered me to fight and get stronger. They didn’t know I could hear them, but I could,” Victoria says, as per ESPN.

In 2010, Victoria had fought her way out of the vegetative state.

It started in December 2009, when she was able to make eye contact with her mother. From there she gradually began to come back to life. She was able to move a finger initally, then over time progressed to waving her hand. Eventually, she was able to form words, and the words then became sentences.

Clearly I Was Destined To Be A Swimmer…. 😂#WheresMyWaterWings #MeltdownsFoDays #ThrowBackThursday

Posted by Victoria Arlen on Thursday, April 23, 2015

She started eating pudding by herself, then migrated onto solids. Then she was able to hold her mobile phone, and learned what it meant to ‘poke’ someone on Facebook.

Yet in spite of the incredible improvements, there remained one thing she couldn’t do: move her legs.

Victoria was told that the swelling to her brain and spinal cord had caused permanent damage. She would be paralysed from her waist down forever.

Each specialist told her the same: “You have to get used to sitting in a wheelchair.”

Bullied for her wheelchair

But Victoria boasts willpower like few others. She continued to battle against seemingly impossible odds.

When doctors told her she would never walk, she refused to accept it. She wasn’t destined to spend her entire life in a chair.

Upon returning to high school in a wheelchair, however, she was bullied the wheelchair by some peers.

She had looked forward to going back to school, but after her first day there she never wanted to return.

Victoria came home, totally crushed, on the brink of tears. That day, her parents promised they would do anything to help their daughter recover the confidence to go again.

They kept that promise, and never lost hope.

And hope was all Victoria had – reason spoke against her being able to walk again.

One particular quote characterized her struggle through this time: “Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.”

Eventually, the turning point arrived in Victoria’s life.

Having grown up near a lake and learned to swim at an early age, Victoria was no stranger to water. She had joined a swim team and taken part in competitions when she was just 10.

Life Rolls On! #NeverGiveUp #RockYourDissability

Posted by Victoria Arlen on Thursday, February 28, 2013

While recovering from her disease, Victoria believed she would never be able to swim again. She thought it impossible without the use of her legs.

But her brothers thought differently. In 2010, they threw her into the family pool. She was terrified at first, but this was the push she needed.

She says she got back the “jump” in her life. Whilst swimming, Victoria was free from the chair, and to her own surprise she remained a strong swimmer.

What’s more, the water gave not only freedom, but confidence as well.

In the summer of 2012, at 17, Victoria was part of the US team that competed in the Paralympic Olympic Games. She took home three silver medals and one gold in the 100 meter freestyle. She also set a new world record in the latter event.

When she returned home from London, much of the world knew who she was. Victoria was invited to speak as a lecturer, and people began to recognise her locally.

She began to tell her story to television reporters and magazines; she became an inspiration for millions around the world.

There was, however, one thing that still bothered her: That wheelchair.

In 2013, Victoria moved to San Diego to participate in the Project Walk program, which helps paralysed people to stand on their own two legs again.

“My mother and I temporarily relocated to San Diego and lived with family so I could train every day. We realized this was the place that could help me, but we didn’t want to live hundreds of miles away from my brothers and dad. So, keeping their promise, my family decided to open the first Project Walk franchise on the East Coast. This way, I could train every day and achieve my goal, while others in my hometown could regain the hope they needed,” Victoria says.

Even so, specialists at the hospital were sceptical over Victoria’s capacity to walk.

A doctor told her parents he wouldn’t “mortgage his house on it”. They responded by doing exactly that, so that they could afford to open a Project Walk Boston.

On November, 11, 2015, Victoria took her first small steps.

She was held in a harness above a treadmill, with two coaches helping her to move her legs.

By then, it had been six years since she had ‘woken up’. He legs had been declared dead by multiple doctors, again and again.

Still, Victoria got up every single day and trained six hours to reach her goal.

Slowly, she began to regain movement. Before long, she was able to walk with the assistance of crutches.

Five months later, March 3, 2016, she lost the crutches completely and put one foot in front of the other independently. She hasn’t stopped since then.

“That’s not to say every day is perfect. Walking is still challenging and I still have significant impairment. I wear leg braces, follow a training program for two-to-three hours per day and on the days when my legs feel more paralyzed, I have my chair or crutches on standby. But my struggle is now less visible,” she explains.

Only her coach and her close family know the true extent of the damage, and the effort it takes for her to continue progressing each day.

“But it’s all worth it. It’s been 10 years since I was able to look someone in the eye instead of staring at everyone’s butts all day.”

When Victoria first stood up from her wheelchair, she didn’t know what to think.

She was unsure how people would react to her.

“But then I realized this is my journey and nobody else’s and maybe it can give hope to people who need it most.”

Today, Victoria has discovered her new identity after a turbulent 10-year journey.

She is a Paralympic gold medalist, a program leader for the ESPN sports channel and, most of all, a survivor.

Victoria is often seen as a walking, talking miracle, and an inspiration for all. She, however, is careful to point out one thing:

“I didn’t do this on my own, and I am grateful for everyone who has helped me to this point. Each day, I become more comfortable with my new reality. I thought taking those steps on March 3 would be my finish line. But really, they were only the beginning.”

Wikipedia Commons / BMalkinson

What an incredible journey this strong, brave and inspiring woman has embarked on!

The least we can do is share her story so that all of our friends and family are also given the chance to be inspired by her battle!

“Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.” 

We wish you the best of luck in the future, Victoria.