harlequin ichthyosis

Mui defied all odds – now she’s inspiring the whole world with her incredible story

© The Girl Behind The Face Mui biological mother abandoned her because she didn’t look like any of the other ...

Everyone Thought He Would Die When He Was Born. Now The 6-Year-Old Is Touching The World With His Struggle Against A Rare Skin Disease.

When Evan was born June 9, 2010 he was nine weeks premature. Just two days before his birth, doctors informed ...